MRI means scananiexty

R73C3829.jpg

Tomorrow I have the pleasure (sarcasm) of having my yearly MRI, yes I get a yearly MRI. Everyone keeps asking me why. At first I was all defensive and was ready to get on attack then my breastie Lisa wrote a post about how she feels just about this fact. I realized that most people were not judging why I had one but were jealous (not in a bad way but in a I am so scared I wish I had one too way). They wanted any scan to see that the beast was gone but most doctors do not do this.  Although I know my breastie downstate Annemarie is having one too this week, she has to do whatever I do! Having a scan never guarantees anything but for a moment after the freak out or course, it does let us breath a sigh of relief. It lets us feel like we are NED for awhile, No Evidence of Disease. Saying cancer free indicates we are free, reality is we are never free of cancer. Trust me we are always reminded.

I had my lumpectomy June 2012 and then my first MRI following that. I remember that day all too well. I was nervous but I really thought the lumpectomy got everything so I was doing ok. Except for the fact that the contrast really messes with equilibrium, MC actually caught me a few times. I remember joking with the techs and laughing thinking all was fine. Then we went back into the room with the radiologist and he showed us the MRI.  There were my breasts, those stupid dumb bitches. The right still filled with cancer the left a "probable benign spot"-serious who makes these words up that is ridiculous. MC was asking all these technical questions, I just sat and stared at the screen. It was all lite up in pretty colors letting me think it was a sparkly beauty but really it was in there trying to kill me. The lumpectomy did not work, I needed a mastectomy.  And make it a double I did not want that probable spot coming back with a kick.

I  had the mastectomy in July 2012 then in April 2013 I found a lump, a skittle if you would. In the exact spot that the original cancer. Mild freak out happened but I did my best to remain calm. My breast care doctor took me that day and she removed it in office, it really was just a skittle! No really just a cyst but how I had a mastectomy? Guess that 1% of breast tissue that was still there. I had an MRI soon after my first yearly and I was clear for take off. Then the DIEP this past December 2013 and my plastics took 2 swollen lymph nodes out from the left side the "probable benign" spot. His words as he has me completely cut open everywhere "I thought FUCK if this is cancer and I can not do her recon she will kill me" came back "unremarkable" another dumbass word. I mean really give me something better than that.

ALL that being said when it is up for a scan there is no wonder I get a little freaked. You see cancer is not cut and dry there are always many variables and everyone's process is so different. I have a feeling that I will be ok but come on cancer has a mind of its own so I am scared to jinx it at the same time. Almost like if I get to cocky it will come back and say "Didn't see that coming did you" so I want to be prepared, but not too prepared.  I had someone say to me "oh I had a mammogram the other day I was fine you have nothing to worry about" I get they were making me feel better after a cancer DX a scan just isn't that simple. You get this pit in your stomach like when you are starving but then you go on a roller coaster after eating Christmas dinner. That is how you feel. Then your head jumps in and starts playing these mind games. You want to stay positive but then you have this pain under your arm right were they took nodes out and what if..... But you can not live in that what if world but how do you get out of it??

Plus I see the look on my four boys faces just now as I Sam asked if tomorrow was scan day and I said yes. We went from a simple family game of Uno to 4 boys with turned down smiles thinking what if? They get that it is all different now that that cancer made its appearance once and we didn't see it coming now we don't want a surprise. I refuse to tell them it will be ok because last time I did that I came back a liar. I simply said "positive energy right?" to which Julian replied " good you will be mother" in his best Yoda voice. Nothing like a little Star Wars to break the tension.

So tomorrow they will inject me with contrast, I will get all wonky and MC will steady me out. I will hold my breath until my follow up appointment. OHHHHHHH yeah that appointment is on the day I found my lump. is that a good sign or a bad omen?? I am going with good cause you know what they say....Oh I don't know what the hell they say but I am going with the good! Now hold my tiara while I get my MRI.

Shoes, attitude shoes

Stilettos before a mastectomy, please?! Some very rude woman sent me a private message saying "You are dumb to worry about shoes you should worry about cancer".  Yet she never asked me why I did. Just made some judgmental comment knowing absolutely nothing about me and my reasons. And it dawned on me had I ever explained why, mind you I do not need to but I think maybe just to be a nice pink princess I will. The reality is we are so quick to judge how someone handles a situation when it its how we would we do not think that maybe they needed it to be that way. Maybe just maybe those stilettos helped, well yes they did!

Glinda the Good Witch- “You had the power all long”

Glinda the Good Witch- “You had the power all long”


I will start with the pink sparkly ones that I strutted into my mastectomy with. I am all of 4 feet 11 inches and have no choice but to wear heels. If I do not I am a midget, no really I am a legal one in some states. My BFF is significantly taller than I so whenever we are together I make sure I wear heels. Her daughter has forever loved to come over and find her way to my closet and try on my shoes. There was a time when my shoes were too big for her since then I have taken her hand me downs gladly! What is it about putting on a pair of stilettos that makes you feel so WOW?? I saw it every time Riley would rock my shoes, but I would feel it when I put them on. Something comes over you. When I wear heels I feel strong, powerful and full of attitude. Riley saw these shoes and decided I needed them for my surgery. How brilliant is this child at 12?? After a pedi (yes before my surgeries I always get a pedi) I opened the box. I looked at Riley and Nikki and  said "I am wearing these into surgery. Cancer can take a lot but not my sparkle.". They both squealed with delight because they were hoping I would say that. These shoes gave me attitude and I wanted as much attitude as I could get.

I think about how when you go for your prom dress, wedding gown or any party attire when you try on the shoes they make the outfit because they give it the attitude. Now let's admit that hospital gown needs some bling for sure. The shoes with that gown changed the mood. Everyone would walk in and stop and SMILE. I was dubbed "the Diva in heels" and I was completely fine with that. They all wanted to see if I could walk in them which cracked me up and kept me laughing which is the best medicine. Now I am not saying this was a light subject no way was a mastectomy, swap, hysterectomy, and DIEP easy or light. But I needed to be calm and laughing, smiling and having power was how I was going to handle it. This was the way I choose to deal with my process, this is after all my story of stupid dumb breast cancer not yours, isn't it? So why really does anyone care if I wear heels, if someone sings and dances, if someone cries or if someone silently goes down to surgery? We are all so different I do not expect anyone to fill my shoes must least wear them!

Strong women wear their pain like stilettos. No matter how much it hurts, all you see is the beauty of it.

Strong women wear their pain like stilettos. No matter how much it hurts, all you see is the beauty of it.

Sometimes those stilettos sat at the end of the bed because I physically could not put them on. The pain, the medication, the surgery were all taking over. But they were never far from reach always there to remind me that there was strength in a shoe, in me. The pink ribbon is fine for some but a stiletto now that is power. See sometimes I didn't wear them I just needed to see them to make me see that I could still sparkle with power and all the attitude I needed to over come the beast that lurked inside of me! I wanted to be reminded that somehow I was going to still be able to walk in those again even if at that moment I could not.

“A woman and her shoes… it’s a beautiful thing.”

“A woman and her shoes… it’s a beautiful thing.”

I did however send a pair of shoes to two of my sweet darling friends who were in their teens. Jackie who battled cancer and called them here chemo heels and guess what they did for her?? They made her SMILE!!! She even wore them to prom. Did they stop her chemo for making her ill or make it less scary? No way but for a moment they brought her just the smile she needed.  The other darling was my ray of sunshine Lola, who has taken wings. Lola could not walk in the heels she was too weak but they still made her laugh and bright a glimmer of life to her that day. Those crazy ass heels did not cure Lola's cancer they did not stop it from spreading but they made her laugh, loud and carefree. Her mother was grateful for those heels that day when Lola played in that beautiful moment.  For those moments a pair of shoes have become a beautiful thing at a dark time.  

“You put high heels on and you change.”- Manolo Blahnik

“You put high heels on and you change.”- Manolo Blahnik

When I wore those sparkly pink stilettoes I felt powerful like there was no stopping me. I wanted them on my feet hours after surgery which gave the nurses and my father a mild heart attack. My father actually cut off my blood flow because he was scared to let go of me, shhhhh do not tell him but if he did I would have let go I would have fallen. Here is a secret even though I put those heels on and walked to the door to prove that I could I needed my daddy to hold me. Which was ok, it was better than ok. It was what we both needed at that point. I felt strong and he felt needed. See cancer doesn't just effect the person who has it but it effects every person that loves them and I have this big ass ever loving family. They needed those shoes just as much as I did. The stilettos gave them something to think about, focus on, laugh at and bitch about. To see me wearing them reminded them that I was still their princess and I was going to pull through this stupid dumb breast cancer.  Yes a changed version but sparkly tiara wearing me.

Give a girl the right shoes, and she can conquer the world.Marilyn Monroe

Give a girl the right shoes, and she can conquer the world.

Marilyn Monroe


So next time you judge someone for wearing stilettos to their mastectomy, chemo or grocery story shut your friggin mouth! How someone deals with their  life is about them and has nothing to do with you. Maybe just smile and clap your hands as they go by. Only a true princess can wear 6 inch stilettos and never once let her tiara tip.

Guilt

I was raised Catholic, I am reformed now but the guilt doesn't go away. You know that Catholic guilt or maybe you know the Jewish guilt let's call it religious guilt as to not offend. The type where you feel guilty before you even do something wrong. Damn sins! You have to explain yourself because you feel so bad about whatever the issue is. You are basically guilted into doing something because you have to not because you want to. Most of this guilt is in your head but majority was infected on you by Sister Mary Theresa Josephina while you clapped erasers outside the rectory. I am also full blooded Italian which adds a layer of guilt as well. I know there is Irish guilt but I am not even an ounce of Irish so don't start. Italian guilt is feeling bad that you only made baked ziti, roasted vegetables, meatballs, minestrone soup, chicken cutlets and salad for Sunday dinner and never  did get the cookies made you said you would plus you used rigatonis instead of ziti in the baked ziti! What is screwed up here is your family adds to your guilt by their little comments. Guilt sucks!

Then there is survivor's guilt. I have lived through all the above and I can laugh that  off but this is no joke. I want so desperately to be happy that am approaching with caution my 2 year mark. I want to smile and whisper "I kicked cancer's stupid dumb ass" (I don't want to yell it I may jinx it). But I am so scared. How did I dodge that bullet??? Why do I deserve to live?? I sure have had my share of "karma's coming for me" moments. So I would get it if I was faced with some of the serious treatments my cancer family is. I am not any better than anyone else who has taken wings. My very good friend is embarking on a reoccurrence while I just have to go to Target today, I feel so guilty sitting there across from her. The fact that my  breastie was told that with everything else she has to deal with Stage IV being top of the list now she has lymphedema to deal with when, I feel guilty that I dodged the bullet when she got the cannon.  Even when my very bestest friend who I grew up with got breast cancer a few months ago I felt guilty. I didn't want her to go through this at all I wanted to take it from her and I would have if I could.  Maybe part if the guilt is because we have seen so much we know what is going to happen. I am so mad that my friend went through chemo that wrecked her body only to be told it didn't work and the cancer is back, I feel guilty that I am here doing ok. How is it her, them and not me?? I feel bad, which seems dumb to say but I think you get it, right? It is more than just those three words.

Then the whammy  of survivor guilt the one that makes me cry so hard, guilt that makes my head hurt and wakes me up at night. It happens when I think of my sweet Jenny, when Jen died, my beautiful Kim, Cindy, Olga, Lola and Talia, and Nancy and oh how I miss you my Marian. So many others so many. Why I am I here typing away while you are all flying high? How is that fair?? It isn't! I do not want the "everything happens for a reason bullshit". Shit happens, good and bad, sometimes for no reason I believe that. FUCK CANCER!

I want to be happy to be alive yet I feel so sad that my friends are in real pain. Pain that I not only understand but that can literally be me-I get them. At the next appointment, that could be me. I am guilty to be grateful for now it is not me but I know that could change in a blink. I am happy that I am at this point but guilty that I am happy. Then I am sad that I am losing so many friends and I feel guilty that I am still here. I mad that my friends are living with cancer and they will never be cancer free then the guilt sets in that as if now I am. I am exhausted from this today.

Let me tell you this. Being this guilty is very, very difficult when you want to keep your tiara on!!

Posted on April 3, 2014 .